An effortless and comprehensive approach to burden of illness reviews
Published: 12-12-2018
We have developed our ontology of PRO instruments based on those tools that are cited in the abstracts we index in our heoro.com database. The ontology has over 5,200 instruments that have been indexed to the abstracts that cite them, and we add new instruments as we come across them from our daily search of PubMed.
In October 2018 we added another 39 instruments to the ontology. These are listed in the table below. You can find the abstracts that cite them by searching for their name in the Instrument menu on the heoro.com Dashboard as follows:
1. Go to the heoro.com Dashboard
2. Select "All diseases or no specific disease" from the Diseases menu
3. Select "PRO studies" from the Study type menu
4. Then select the PRO instrument you are interested in from the Instruments menu
5. Click on "Search" and all relevant papers will appear.
The dashboard is completely free to use, and you can download the abstracts identified by your search as a .txt file, which you can them import into citation manager software such as EndNote.
Disease or topic |
Instrument name |
Alopecia |
Hairdex |
Alopecia |
Frontal Fibrosing Alopecia Severity Score (FFASS) |
Alopecia |
Lichen Planopilaris Activity Index |
Anasthesia |
Évaluation du Retentissement de la Surdité chez l'Adulte, ERSA |
Apnea |
Patient-Reported Apnea Questionnaire (PRAQ |
Atrial fibrilation |
Perception of Anticoagulant Treatment Questionnaire PACT-Q |
Cancer |
European Organization for Research and Treatment of Cancer Quality of Life Questionnaire -Anal cancer EORTC QLQ-ANL27 |
Cancer |
Functional Assessment of Chronic Illness Therapy - Cervical Dysplasia FACIT-CD |
Carotid artery disease |
QoL for carotid artery disease scale |
Cystic fibrosis |
CF Respiratory Symptom Diary (CFRSD) |
Cystic fibrosis |
Symptom Scoring system |
Disability |
Personal Outcome Measures |
Disability |
Wheelchair Use Confidence Scale for Manual Wheelchair Users (WheelCon-M-I-short form) |
General |
Carer Support Needs Assessment Tool (CSNAT) |
General |
General Comfort Questionnaire |
General |
Otology Questionnaire Amsterdam OQUA |
Hospitalisation |
Psychosocial Comfort Scale |
Hospitalisation |
Incomfort des Patients de Reanimation |
Hospitalisation |
Hospital Frailty Risk Score |
Injury |
Patient-Rated Ulnar Nerve Evaluation |
Injury |
Spinal Cord Injury-Falls Concern Scale (SCI-FCS) |
Injury |
Wound-QoL |
Liver |
Immunosuppressant Therapy Adherence Scale (ITAS) |
Liver |
Basel Assessment of Adherence with Immunosuppressive Medications Scale (BAASIS) |
Liver |
Primary sclerosing cholangitis PRO PSC PRO |
Lymphedema |
Lymphedema Life Impact Scale (LLIS |
Medication |
Medication Management Test-Revised (MMT-R) |
Oral |
Index of Complexity, Outcome and Need |
Oral |
Orofacial Pain and Temporomandibular Disorders Triage Questionnaire |
Parkinsons |
CHEF |
Serratus palsy |
Helsinki Serratus Palsy Index |
Small bowel obstruction |
Small Bowel Obstruction Questionnaire (SBO-Q) |
Stress |
Stress Perception Questionnaire of Rome (SPQR) |
Stress |
Bad Sobernheim Stress Questionnaire-Brace |
Stress |
Post-Traumatic Stress Disorder Checklist |
Surgery |
Hong Kong Quality of Life Questionnaire (HKQ) |
Tuberculosis |
Quality of Life Instruments for Chronic Diseases - pulmonary tuberculosis (QLICD-PT). |
Work |
Total Quality of Work Life TQWL-42 |
Work |
MS Work Difficulties Questionnaire (MSWDQ-23) |
Written by
Alexandra Furber
Researcher at Crystallise