Published: 26-07-2017

We have developed a unique ontology of over 5,000 different instruments that have been used to assess patient-, caregiver- or clinician-reported outcomes as part of heoro.com. This ontology is added to regularly as we come across new instruments, through the new abstracts that are added to the database every week from PubMed searches, and from our ongoing process of manually checking the indexing of abstracts that are already in the database.

Between January and June 2017, we have added 92 new instruments to the database. These are listed below. Users of the database can find abstracts where these tools are cited by searching the Dashboard for:

• Disease: All diseases or no specific disease
• Study type: PRO studies
• Instrument: [the name of the instruemnt of interest]

If you are interested in studies from a particular location, you can also limit your Dashboard search to that country using the Location menu.

 

PRO  instruments added to www.heoro.com between January and June 2017 by disease area or topic

General

• ADL/WHO Unescap score

• Brief Physical Activity Questionnaire

• Brief Resilient Coping Scale (BRCS)

• Kellner's Brief Problem List

• Kupfer-Detre System II somatic symptom scale (KDS-II)

• Richmond test

• Self-Control Schedule (SCS)

• Self-Efficacy Scale

 

Attitudes and stress

• Benefit, satisfaction, and willingness to continue questionnaire

• Brief Job Stress Questionnaire (BJSQ)

• Compliance Questionnaire (CQ)

• Generic Job Stress Questionnaire (GJSQ)

• Impairment level Sum Score [ISS])

• Medical Decision Making Questionnaire (MDMQ

• Net Promoter Score (NPS)

• Occupational Stress and Coping Inventory (AVEM)

• Patient Satisfaction with Study Medication (PSSM)

• Placebo response survey (PR12)

• Trucker Strain Monitor

 

Caregiver

• Quality of the Carer Patient Relationship Scale

 

Children and adolescents

• Beck self-concept inventory for youth (BSCI-Y)

• Cleveland Adolescent Sleepiness Questionnaire (CASQ)

• Juvenile auto-inflammatory disease multidimensional assessment report (JAIMAR)

• Multidimensional Anxiety Scale for children (MASC-C)

• Quality of Life Assessment in Spina Bifida for Children (QUALAS-C)

 

Elderly and dementia

• AD-5D (Alzheimer’s disease )

• Aging Perceptions Questionnaire

• Clinical Frailty Scale

• Cognitive Reserve Index questionnaire (CRIq)

• Community Dementia Quality of Life Profile (CDQLP)

• Memory function questionnaire (MFQ)

• Memory inventory

• Mental status questionnaire, MSQ

• Numerical 11 point box (BS-11; BOX-11)

• Orem cognition form and self-care checklist

• Severe Impairment Battery (SIB)

 

Cancer

• Advanced Basal Cell Carcinoma Index (aBCCdex)

• BC-PROM (Basal cell carcinoma )

• Functional Assessment of Cancer Therapy-Enteral feeding

• Lerman's Cancer Worry Scale

• Preparedness for Colorectal Cancer Surgery Questionnaire (PCSQ-pre 24)

 

Cardiovascular

• Aneurysm Dependent Quality of Life (AneurysmDQoL)

• Aneurysm Symptoms Rating Questionnaire (AneurysmSRQ)

• Angioedema Quality of Life questionnaire (AE-QoL)

• Nottingham Health Needs Assessment (NHNA)

• PAH Symptom Severity Scale (pulmonary arterial hypertension)

• Pulmonary Arterial Hypertension Symptom Interference Scale (PAHSIS)

 

Haematology

• HEP-Test-Q (haemophilia)

 

HIV

• HIV Exercise Stereotype Scale (HIVESS)

 

Mental health

• Alcohol and Alcohol Problems Perception Questionnaire (SAAPPQ)

• Barkley and Murphy Current Symptoms Scale

• Patient Related Anxiety Scale (PRAS)

• Structural Clinical Interview for DSM-III

• Temperament Evaluation of Memphis, Pisa, Paris, and San Diego-Auto questionnaire (TEMPS-A)

 

Musculoskeletal

• American Academy of Orthopaedic Surgeons-Foot and Ankle Outcomes (AAOS-FAO)

• American College of Rheumatology criteria ACR 50

• EULAR Sjögren's Syndrome Disease Activity Index (ESSDAI)

• European League Against Rheumatism response rate (EULAR)

• Fibromyalgia Rapid Screening Tool (FiRST)

• Kaikkonen scale

• Maine-Seattle back questionnaire

• Psoriatic Arthritis Screening and Evaluation Questionnaire (PASE)

• Simplified Disease Activity Index (SDAI)

• Work Productivity and Activity Impairment for RA (WPAI-RA)

 

Neurological

• Brief International Cognitive assessment for MS (BICAMS)

• Carpal Tunnel Syndrome symptom severity

• Impact of NF1 on Quality Of Life (INF1-QOL, neurofibromatosis)

• Multiple Sclerosis Questionnaire for Physical Therapists (MSQPT)

 

Oral health

• Ambient Care Scale

• Malocclusion Index

• Positive Oral Health and Well-Being Index (POHW)

 

Pain

• Alberta Breakthrough Pain Assessment Tool (ABPAT)

• ID Pain

• Pain Description List

• Pain/Discomfort Assessment

 

Respiratory

• AOM-specific parental QoL questionnaire (acute otitis media)

• Breathlessness Diary

• Chronic obstructive pulmonary disease morning symptom diary (COPD-MSD)

• Newcastle Asthma Symptoms Questionnaire

• Sleep Apnea Clinical Score

• Snoring index

 

Skin

• Cassileth Scar questionnaire

• European Scleroderma Study Group activity index

 

Trauma and surgery

• Whiplash Disability Questionnaire (WDQ)

 

Urogenital and sexual

• Cleary 30-item questionnaire

• Partner Performance Questionnaire

• Renal Treatment Satisfaction Questionnaire (RTSQ)

• Wagner questionnaire

 

Healthcare delivery

• European Project on Patient Evaluation of General Practice Care

• Global Operative Assessment of Laparoscopic Skills scale

• Individualized Care Scale

• Press Ganey® Medical Practice Survey